The 6th stage of grief: finding meaning

NICU donation from Mikayla's Grace

David Kessler recently identified the sixth stage of grief as finding meaning in your loss. Kessler states, “meaning comes through finding a way to sustain your love for the person after their death while you’re moving forward with your life. Loss is simply what happens to you in life. Meaning is what you make happen.”

This concept of finding meaning in grief has been around for much longer. In the 1980’s Miles Model for Parental Grief describes the search for meaning as part of the reorganization phase of grief.

If you have experienced a pregnancy loss meaning making can be an important part of your grief process. In this article you will learn what meaning making is and ways to make meaning of your loss.

The concept of meaning making simply put is finding meaning around why this loss happened to you. No one wishes for a loss or is glad that it has happened but many of you may find some peace in finding purpose.

Here are 3 ways to make meaning in your grief:

  1. Volunteer- some parents of loss have started non profits, other parents volunteer at organizations that support bereaved parents. Some of you may donate time or money.

    Local organizations: Mikayla’s Grace and Bereaved Parents of Madison both accept volunteers at different times of the year.

  2. Advocate- some bereaved parents find meaning in advocating for policies that impact bereaved parents and infant and pregnancy loss.

  3. Education/reducing stigma- Some of you may also find meaning making in educating others or reducing stigma by talking or writing about your loss. This may be in your social circles, on a social media platform, speaking at public events or writing news articles or blog posts.

If you have experienced a loss has meaning making been an important part of your grief? How have you found ways to make meaning of your loss? To learn more about stages of grief and pregnancy loss or to sign up for a free 15 minute phone consultation you can contact me here to work with a therapist Madison.

Pictured above, dropping off donations from Mikayla’s Grace to a local Nicu.

Meditation for miscarriage, pregnancy after loss and new moms

I remember trying to meditate for the first time. I made every excuse in the book to avoid it. I convinced myself that I did not have time, convinced myself that it wasn’t a good use of my time, that I wasn’t doing it right so what was the point. It took YEARS until I developed a regular practice and it is still a work in progress.

Meditation has so many unbelievable benefits. According to Positive Psychology.com , meditation can reduce physical, mental and emotional disturbances. This can include anxiety, depression, pain, blood pressure, stress, migraines, IBS, ect. Meditation can be so effective.

So if it is so great, why isn’t everyone doing it? What I hear often is that it is hard, you may think you are doing it wrong and if you are doing it wrong what is the point? Other reasons can include you may feel uncomfortable, overwhelmed or don’t want to feel anything.

All of the reasons are valid. I like to invite my clients to start small. Try to take one minute everyday where you just try to tune into your body and breath and go from there. Many of you may find it is easier to do when you have someone guiding you. I certainly do! There are meditations everywhere it seems but finding one that resonates with you is important.

Recently I have created some meditations with you in mind. My library is building slowly but I currently have meditations for miscarriage, pregnancy after loss and motherhood. I will be adding more soon. If you are looking for a specific meditation that is a fit for you please- DM me, reply to this newsletter and let me know what you are looking for and I will do my best to make that available to you.

Interested in learning more about the meditations from a therapist Madison? Click here.

Happy Meditating!

The emotional toll of a Missed Miscarriage

Having a miscarriage can be devastating. You may know signs and symptoms to look for  when your body may be starting the process of miscarriage and look for those throughout the first trimester. However, you may not know  that you can suffer a loss, but the body may not show signs of a miscarriage. This is referred to as a missed miscarriage.

Having a missed miscarriage can add an extra layer to the grief and trauma around early pregnancy loss. According to www.progny.com, “A missed miscarriage, also known as a missed abortion or a silent miscarriage, occurs when a fetus is no longer alive, but the body does not recognize the pregnancy loss or expel the pregnancy tissue. As a result, the placenta may continue to release hormones, so you may continue to experience signs of pregnancy.” A missed miscarriage can be devastating when there has not been any symptoms, and often, these symptoms may be typical of a healthy pregnancy - i.e., fatigue, nausea, etc. For most of you, you will find out about missed miscarriages when you go into your doctor’s office for your first appointment. One of the happiest days of your life (when you get to see your baby for the first time) can quickly turn to one of your saddest (finding out your baby is no longer alive).

For many carrying partners this can feel like your body has failed you, twice. Once, that your body was not able to carry a baby to term, and twice, because if your pregnancy was to end in a miscarriage why did your body not do this naturally? This can lead to a strong mistrust in your body that may lead to abuse or neglect of yourself. This also can present in a subsequent pregnancy causing anxiety and depression or ptsd. It can feel like your body is not a safe place for a healthy pregnancy after a missed miscarriage.

Having a missed miscarriage also leads you to what can be a difficult and painful decision of deciding how to manage the miscarriage process. While some people will wait to see if their body can complete the miscarriage on its own, most doctors will encourage you to schedule an intervention to manage the miscarriage process for health concerns.

After a decision has been made it can still be weeks to months to complete the process and symptoms of pregnancy may linger for months after that.

It is common to feel many different things, some common ones being shock, anger, denial, grief, shame, jealousy. You may feel a loss of control. It can be helpful to get connected to support during a missed miscarriage whether that is a support group, or a therapist that can help you talk through your decision, feelings and support you through the process and after a loss. Having a miscarriage can be isolating, finding support can make a huge difference.

Finding ways to be present in your body can be an important part of your process. Whether this is through grounding, centering, breathe work or exercise, movement or dance, it is important to be in your body and find healthy ways to reconnect with your body.

For more resources on miscarriage and to learn about the miscarriage support group with a therapist Madison, sign up for my monthly newsletter here. https://www.kullcounselingmadison.com/

October is pregnancy and infant loss awareness month 2020

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October is pregnancy and infant loss awareness month. For me it is the time of year that I think about the baby that I lost through miscarriage. October is the month that I found out I was pregnant. I told my husband by buying pumpkins. One for him, one for our daughter, one for me and a tiny pumpkin to let him know we had a new pumpkin on the way. It was such a happy moment and I remember it so vividly even though it was 6 years ago now. Even though I know it is coming every year I am still surprised by it every year. This year it came early. My rainbow baby pointed to a small pumpkin the other day on our walk and said, “oh mom, look how cute this baby pumpkin” is.

Do you have moments like this? A memory or object that bring up thoughts of your baby?

This month is pregnancy and infant loss awareness month. This year is Covid-19. Usually it is a month filled of events that help you by bringing together a community of families that hold their babies in their hearts instead of their hands. This year that will look different. I have included a list of some virtual events in the Madison area. I know this year may be difficult for you because community can be such an important part of your healing journey. Please know that even though we are not able to gather in person, there is still a community here to support you.

OCTOBER:

1st: Miscarriage support group - The free monthly miscarriage support group will meeting virtually on October 1st from 5 - 6:15 p.m. Please email julie@kullcounselingmadison.com to register.

3rd: 10 a.m. CST: Now I Lay Me Down to Sleep virtual walk

The Virtual Walk includes an online presentation with readings, music, and speakers to honor your baby. During the presentation, each baby is honored by having his or her name read aloud.

Also the 3rd: Harley’s Hustle virtual 5k Set your course, set your pace, and just run. Share your pictures by tagging @HarleysHustle on social media.

8th: 6:30 p.m. GPS Hope Janesville (2nd Thursday)

12th: 5:30 - 7 p.m. Bo's Heavenly Clubhouse Support Meetings at Higher Grounds Coffee Shop in Beaver Dam (2nd Monday)

15th - 18th: Forever In Our Hearts Remembrance Day: Join by creating a sense of community and support found at in-person walks. There are many ways to join this event - purchase a yard sign, walk in your community, watch a video of the names of babies being remembered this year, and so on.

26th: 5:30 - 7 p.m. Bo's Heavenly Clubhouse Support Meetings at Higher Grounds Coffee Shop in Beaver Dam (4th Monday)

For more information on miscarriage or the above events email julie@kullcounselingmadison.com or 608.239.4807.

October is pregnancy and infant loss awareness month

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In 1988 Ronald Reagan declared October as Pregnancy and Infant loss awareness month http://nationalshare.org/october-awareness/

“When a child loses a parent, they are called orphans.

When a spouse loses a partner, they are called a widow or widower.

When a parent loses a child, their is not a word to describe them.” -Ronald Reagan

Every October we take a moment to honor babies gone too soon. For many this may be a very difficult time of year, but can also be a time of year for healing.

Here in Madison we are fortunate to have some great resources for those who have suffered pregnancy or infant loss.

October 2- Lunch and Learn about Pregnancy after a loss at Madison Area Parents Support

11:30-12:30 p.m.

Psychotherapist Julie C Kull, LCSW will lead a lunch and learn discussing education and coping skills for pregnancy after loss.

https://www.madisonareaparentsupport.org/calendar

402 E Washington Avenue at MAPS Base Camp

October 3- Kull Counseling Miscarriage Support Group

5:30-6:45 p.m.

This support group is run by psychotherapist Julie C Kull, LCSW. The purpose of this group is to provide a safe place to share your loss and connect with others in the early loss community. We will be painting rocks to honor your babies in October.

720 Hill Street, Madison, WI

To register contact Julie at 608.239.4807 or julie@kullcounselingmadison.com

October 17- Bereaved Parents of Madison Support Group

7:30pm (Doors open at 7:20pm)
St Mary's Hospital in Conference Bay 4
700 South Park Street 
Madison, WI

October 19- Remembrance Day hosted by Mikayla’s Grace

“This Remembrance Day is to honor families who have lost babies through pregnancy, stillbirth, or in early infancy. This 9th Annual Forever in Our Hearts Remembrance Day is being planned by local bereaved parents and Madison area non-profit Mikayla's Grace.”

BTC Events in Fitchburg, WI

#miscarriage matters...my story

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October is pregnancy and infant loss awareness month. I hope that sharing my story may help someone else find comfort and strength.

This Thanksgiving will mark 4 years since I said goodbye to one of the men that I respected most in this world, my grandfather. As the priest mentioned later at his funeral, it was so fitting that he died on Thanksgiving because he was the most thankful and giving man despite facing many challenges in his life. It was difficult to say goodbye to him, and bittersweet, as I had a secret that only my sisters knew, I was pregnant with my second child.

Fast forward 5 days later and I was sitting at the doctor’s office with my husband and one year old waiting for our 8 week ultrasound. I remember thinking how lucky I felt and how it almost did not feel real. I could not wait to show our daughter that she had a sibling on the way.

The doctor’s office confirmed my pregnancy with a blood test, so it was on to the ultrasound. As the tech started to move the wand around she was silent. I looked at the screen and knew immediately that something was wrong. I had seen what a 8 week ultrasound looked like with my first child and I knew this baby did not have a heartbeat. What happened next is a blur of talking with the doctor, crying, and feeling so empty. I will never forget the nurse that sat me down to go over my options with me telling me how sorry she was and that she had had 4 miscarriages. In that moment, hearing her story gave me strength to get through that day.

I decided to wait hoping that the baby would come out naturally on its own. I spent the next few weeks trying to heal and also let go. I went to my grandfather’s funeral, showing little emotion, fearing that any emotion would lead to a breakdown or trigger the miscarriage.

The baby did not come out on its own. The miscarriage took an entire month to complete. It was a month filled with pain, bleeding, and doctor’s appointments.

After the physical symptoms had subsided, the emotional ones had kicked in. Every person that has had a miscarriage is different and everyone reacts differently. I was embarrassed, ashamed and heart broken. I felt like my body had one job in life and it failed. I told a few people in my support circle. Some people were great, some people had a hard time relating. Support came from surprising places. Even with this support I felt really lonely. I looked for resources in the community and nothing was the right fit. Based on the challenges I had finding help in the community, I made a promise to myself that when I was at a place to help others with pregnancy loss that I would. In 2016 I started taking trainings and doing research on psychotherapy and pregnancy loss. In October of 2017 I started offering a support group for miscarriage.

Having a miscarriage can make someone feel so alone. If you or someone that you love has had an early pregnancy loss please share this resource with them. No one should have to go through this alone.

For more information on pregnancy loss or to sign up for the free monthly support group please contact julie@kullcounselingmadison.com or 608.239.4807.

Going back to work after a miscarriage

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Miscarriage affects 1 in 4 people. Most miscarriages happen in the first trimester. While it is common to have a miscarriage, how it affects you looks different for each person. A miscarriage can take a toll on your wellbeing. Many women struggle with how and when to return to work after having a miscarriage. Below are some considerations for deciding when to go back to work and some coping tips that may be useful at work.

Considerations to make before returning to work:

1. Is your body physically able to return to work?

Having a miscarriage can be a painful experience. It can drain you not only emotionally but physically. It is common that your hormones may be out of whack and is common that you will still have pregnancy symptoms and you may still feel pregnant. The miscarriage may take a few weeks to complete. You may need to take time away to schedule a D & C. You may need to consider what your job asks of you physically. Do you have to do any heavy lifting or be on your feet all day?

2. Are you emotionally ready to return to work?

Do you feel well enough emotionally ready to return to work? You might be having a hard time concentrating. You also may find that your emotions are consuming you. It is common to feel like your emotions are on a roller coaster often feeling more than one emotion at a time. It is common to feel sadness, anxiety, depression, loss of interest in things, isolated, and feeling disconnected from your body.

3. Will you tell anyone?

If you took some time off after/during your miscarriage your boss may wonder while you are out. Will you tell your boss? Have you thought about how you want to tell them? If you decide not to talk about it at work have you thought about what you might tell your coworkers if they ask where you were. Do you have anyone at work that you can trust or that your feel like you want to tell?

4. What can you do if you are feeling upset at work?

When you have a miscarriage it can affect you at different times. You might be feeling okay but then something may trigger thoughts of the miscarriage and feelings of sadness, frustration, isolation ect. Do you have coping skills at work when these feelings come on? Is their someone that you can talk to? Would you like some alone time? Where can you go? Your office, a bathroom, outside for a walk? Does deep breathing help you? A simple method is called four square breathing. Breathe in to the count of four, hold it to the count of four, exhale to the count of four, hold it and repeat. Can you do a grounding exercise? An exercise that is easy to remember is to just feel your feet. Put your feet flat on the floor and bring awareness to any sensations that you feel in your feet for the next minute.

5. When do you have to be back at work?

Do you know your work policies about how much time you can take off this may include bereavement leave or your company may even have a policy around pregnancy loss? Have you contacted the correct departments if you need more time off of work. Most companies have a human resources department that can help to guide you through this process. Can you work from home?

If you do not feel ready to return to work it is important to speak with your doctor. If you are feeling depressed or anxious most days it is also important to talk to your doctor or identify a psychotherapist that you can talk to.

For tips on returning to work and early pregnancy loss contact Kull Counseling, LLC at 608.239.4807.

Best practices for helping women after a miscarriage.

A miscarriage is pregnancy loss before twenty weeks. Early pregnancy loss is estimated to occur in 1 out of 4 women. Most miscarriages happen between 6-12 weeks gestation. Early pregnancy loss is considered a loss but also a trauma. I recently was asked by Kat Schuknecht to give a presentation to the Madison Postpartum collective on best practices in helping people through early pregnancy loss. Here is a summary of my presentation.

Miscarriage is an invisible loss. It is the loss of your baby but also the loss of your dreams to come. Many people wait until the second trimester to share pregnancy news. When pregnancy is unknown by others it can feel invisible to the couple that is grieving. There is no one asking how you are doing or checking in with you. It can be difficult to share your news with others because of the sense of shame and guilt that surrounds the stigma of miscarriage. Many women blame themselves even though it is not their fault. In most cultures there are no rituals or ceremonies to help people grieve. It is normal to grieve with others, you may grieve miscarriage alone or with only a few people and you may feel very isolated.  It can also feel very abstract. If you do decide to share the news of a miscarriage it can feel abstract to the people you are sharing it with. It can even feel this way for your partner. Women tend to connect with their pregnancy and baby early on while partners often connect later in the pregnancy or once the baby is born. This type of loss can feel very uncomfortable for people and you may find them shying away or not knowing what to say.

If you have had a miscarriage you have experienced a major loss. An earlier loss does not equal less grief. Grief does not go away, it becomes part of a new normal that you carry with you. Grief is not linear it is actually quite messy and make look different every day. Grief is different for each person. You have a right to your grief. Your partner's grief will be different from your own.

Miscarriage can lead to feelings of shame, guilt, anxiety, depression, isolation, emptiness, failure, feeling disconnected from your body and sadness. No two people feel the same way. We cannot assume that we know how someone is feeling.

Miscarriage can lead to women feeling disconnected from their bodies. It may lead to difficulties with intimacy. Because women may be feeling disconnected they can be unaware that they are holding trauma in there body. It is important if you do bodywork with people that you are taking a trauma informed approach.

A miscarriage is a loss but also a trauma. Having a miscarriage can trigger post traumatic stress disorder. Symptoms of PTSD to look for our: fatigue, trouble sleeping, hyperarousal, nightmares, lack of concentration, anxiety, depression, loss of appetite and frequent crying. Pregnancy after a loss can be triggering for people.

Women who experience a miscarriage can have postpartum depression or anxiety. Anytime a woman goes from pregnant to not pregnant there is a shift in hormones that can affect brain chemistry.  It can be difficult to identify what is grief and what is anxiety or depression.

How Can Professionals Help

Holding Space - Professionals can help by holding space for clients. Holding space is being present with clients. Starting where a client is and remaining non judgmental. It is providing an environment that honors your clients needs.

Communication - How we communicate with people about early pregnancy loss can greatly impact our work. By opening dialogue about early pregnancy loss we can normalize and help reduce stigma. Ask. Include questions about early pregnancy loss in your assessment.  Take cues from clients when addressing early pregnancy loss. Refer to it as your client does. Whether they call it a pregnancy, a baby or even a name. If you meet with couples acknowledging a partner's grief.

Advocacy - Advocate for your client's needs on different level. At a micro level address their needs within your office. Are there pictures you may want to take down in your office or waiting room? Does this client have to wait in a room full of pregnant women? Is it possible for them to wait in the office? If you have someone that needs support validating and normalizing that it is okay to need support. Connect them to resources in the community. Therapy and Support groups are a few sources of support.

What do clients want us to know? I surveyed a group of women that had experienced early pregnancy loss and this is what they wanted providers to know.  They wanted providers to:

  • Be present with the client and loss

  • To listen

  • To validate

  • To understand that grief is a lifelong process

  • To be told they are a mom

If you are a provider or someone that has experienced miscarriage and our looking for resources Kull Counseling provides therapy and a free monthly miscarriage support group. Contact Julie at 608.239.4807 for a free 15-minute consultation.

 

The guilt of miscarriage

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It is estimated that 1 in 4 women will experience a miscarriage.  For many, having a miscarriage is a devastating loss that leads to a roller coaster of emotions. One common emotion many women hesitate to talk about is guilt. When you have a miscarriage there is a large amount of guilt associated with it because you feel like you did something wrong.  

 

Different types of guilt with a miscarriage:

1. The Guilt of It was my job. You may feel that that having a baby is part of your role as a woman and a wife. You might feel guilty that this is your job and since this is your job and you did not give birth to a healthy baby you have failed your job. You might have been taught that pregnancy and motherhood come naturally (and easily might I add) so when you are not able to maintain a healthy pregnancy there are strong feelings of guilt.

2. The Guilt of I did something wrong. If you believe #1, that it was your job to get pregnant and have a baby, than this is usually where the second layer of guilt sets in. If you could not do "your job" than you must have done something wrong. Did I drink too much caffeine? Was I exercising too much or not enough? Was it that glass of wine I had before I knew I was pregnant? You probably have come up with a dozen things that might have caused your miscarriage and concluded that is was your fault. 

3. The Guilt of what if I can't get pregnant again. If it was your job and you did something wrong than you might be feeling it is quite possible that you cannot get pregnant again. You may fear that you have already lost a baby and now you feel the guilt of what if I already lost one baby and I will never be able to have another. You might feel that this was your only chance and you did something wrong to cause this. You might feel that this is punishment for something else that happened in your life.

Guilt is an intense emotion and a very real part of the healing process of losing a baby in early pregnancy. There is help working to challenge these negative thoughts and normalize these feelings. If you have experienced early pregnancy loss it is not your fault, and  you are not alone. To learn more about guilt and other common feelings after a miscarriage or more information about the free monthly miscarriage support group please contact Julie at 608.239.4807 or julie@kullcounselingmadison.com

5 things no one tells you about a miscarriage

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A miscarriage is defined as the loss of a pregnancy before 20 weeks. It is estimated that 1 in 5 women will have a miscarriage. While many women have a miscarriage, it still remains a taboo subject, and can be very isolating for a woman to go through. 

5 things no one tells you about a miscarriage:

1.  It is a major loss - Going through a miscarriage is a major loss; whether you were 4 weeks pregnant or 20 weeks pregnant. Every woman has a different reaction and experience with miscarriage, and needs time to process and grieve what they have gone through.

2. The physical process can last weeks, if not months - Some women will miscarry at home while others will require medical interventions. Miscarriages can last weeks before they are completed. Because hormones are in the body some woman can continue to experience pregnancy symptoms such as nausea and weight gain. Once a miscarriage has completed it can take months for a woman's body to acknowledge they are no longer pregnant.

3. The mental process can last longer - Miscarriages are tough to deal with and can make you feel alone. People will try their best to support you and help you through your miscarriage, but may not understand what you are experiencing. In addition many people do not feel comfortable discussing having a miscarriage, which can make it feel isolating when you are experiencing one.

4. Your partner's grief will be different than yours -  It can be difficult to understand how your spouse or significant other feels.  Everyone experiences grief differently. While your grief can be different it is still possible to support each other. Open communication is key in understanding your partners grief.

5. It's okay to want to try again - Medical providers have different recommendations on when you can start trying again. Some for medical reasons and others for emotional/mental readiness. No one can tell you when you will feel ready to try again. It is something that each person will have to assess for herself. 

Each person's experience with miscarriage is completely unique and there is no "right way" to process grief. Not every person that experiences a miscarriage will need extra support, but if you feel like you need support through a miscarriage please contact Kull Counseling, LLC at 608.239.4807 or julie@kullcounselingmadison.com.